Publications & Reports

Chronic Disease Self-Management by People With HIV.

McDonald K, Slavin S, Pitts MK, Elliott JH and the HealthMap Project Team
Monash University, Melbourne, Victoria, Australia La Trobe University, Melbourne, Victoria, Australia karalyn.mcdonald@monash.edu.

Abstract

As HIV has transitioned into a chronic disease, reappraisal of clinical management has occurred with chronic disease self-management (CDSM) as one possibility. However, despite extensive work on CDSM across a range of diseases, little attention has focused on psychosocial contexts of the lives of people for whom programs are intended. This article reports semi-structured interviews used to explore health practices and motivations of 33 people with HIV (PWHIV) in Australia. Within participants' accounts, different forms of subjectivity and agency emerged with implications for how they understood and valued health-related behaviors. Four themes arose: health support and disclosure, social support and stigma, employment/structure, and health decisions beyond HIV. The experience of stigma and its intersection with CDSM remains relatively un-chartered. This study found stigma shapes agency and engagement with health. Decisions concerning health behaviors are often driven by perceived social and emotional benefit embedded in concerns of disclosure and stigma.

Publication

  • Journal: Qualitative Health Research
  • Published: 01/01/2016
  • Volume: 26
  • Issue: 6
  • Pagination: 863-870

Author

Health Issue